AHMF: 98 Conference: Lyons

Personal Experience With ME/CFS

Michael Lyons

ME/CFS Sufferer
109-111 Crown Road QUEENSCLIFF NSW 2096

I will present my own case history outlining the viral, environmental and chemical onset of the symptoms which were later diagnosed as CFS.

I'll talk about who I was as a personality and the goals I had before CFS and the enormous impact this disease had on my life, socially, economically and physically.

The hardships I faced dealing with the medical fraternity and other health care professionals in convincing them of the severity. How young people are treated differently compared with adults and their experiences regarding:

misdiagnosis of pervasive refusal syndrome
malingering
munchausen syndrome
hypochondria
doting parents
depression
school phobia
disbelief
social security
intimidation and humiliation
schooling difficulties