Board of Directors:
Susan A. Brookes
Christine J. Hunter AM
Annette C. Leggo BSc
Simon R. Molesworth AO QC
Medical Adviser:
Dr Michael M. Barratt,
MB, BS(Syd), FRCPA
Educational Adviser:
Maureen A. Stephenson, BA
Dip School Admin, MACE
Sydney Morning Herald
Medical Editor:
Julie Robotham.
"Alison was suffering
terrible physical distress
compounded by insults
and inhumanity"
Read article.
Charles Darwin film "Creation"
Dedicated to Alison Hunter, Emily Chapman, Jenny Hill, Tracey Ash, Casey Fero, and Sophia Mirza and all those whose lives have been devastated by chronic post infection diseases. Read more.
World Health Organisation (WHO) 1969
Priority 1 Disease of Public Health Importance
Centers for Disease Control(CDC) 1997
ME/CFS is a broad diagnosis which includes clinical syndromes linked to known infectious agents including Ross River virus, Epstein Barr virus, Q fever, Lyme disease, Parvovirus B19 and toxic exposures such as organophosphates. These syndromes are characterized by neurological, gastrointestinal, cardiovascular and myoarthralgic symptoms. Severe forms can present with paresis, seizures, intractable savage headache, and life threatening complications.
The renaming to chronic fatigue syndrome in 1988, giving misplaced emphasis to "fatigue", trivialises the substantial disability of ME/CFS which can extend to the wheelchair or bedbound, requiring 24 hour care.
Strong evidence is accumulating for the role of infection, immune dysregulation and genetic predisposition.
- ME/CFS patients are more sick and have far greater disability than patients with cardiac disease, chronic obstructive lung disease and depression
- Psychological factors play no role in the
development of post-infectious ME/CFS
- US Centers for Disease Control, AACFS Conference 2004
Latest News:
Chronic Fatigue Syndrome Study
University of Sydney Participants required
in a study investigating whether tick borne infections may contribute to the
symptomology of CFS.
READ MORE HERE.
Invest in ME Conference 2012 DVD Order.
Invest in ME - "Lost Voices" Book Order.
Dr Eleanor Stein - Self Help Manual.
Dr Vallings - CFS/ME: Symptoms, Diagnosis, Management
Read:
ME/CFS Primer for Clinical Practioners.
"Disease is very old
and nothing about it has changed.
It is we who change as we learn to
recognise
what was formerly imperceptible."
-
Alison Hunter Memorial Foundation
PO Box 6132 North Sydney 2059 Australia
Phone/Fax +61 2 9958 6285
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